Friday I was on a panel of experts at a meeting of doctors and concerned professionals at the Center for Disease Control in Atlanta working to help families who have children being born or have been born with congenital heart disease. I was amazed at the knowledge in one room. I told Nick’s story and how I had searched for information about others who had had a child like mine. Nick’s story was the longevity side of the experience. Nick has lived along time and is doing well, but the information present by the doctors reinforced just how fortunate that we are to still have Nick and how cutting edge his life still is.
All new mothers need to know about the possibility of congenital heart disease before their child is born. It is the number one cause of death in newborns.