Archive for June, 2009

Where have I been

Thursday, June 25th, 2009

I’m still having computer problems. I hope to solve the last one today, which will cost but I want go into that. Makes me too mad.

Nick is out and about. The pacemaker seems to be working well. He still has one problem. His platelets are way low. Hoping they had  gone up he had blood work on Monday.  His platelets were 57,000 when he went into the hospital for the pacemaker. They should have been 100,000. After the transfusion they went up to 63,000. Monday’s were 37,000. At is 3,000 above being a hemophilic. The coordinator took him off Presaid which can cause the problem. We are going to the hospital tomorrow for the teen clinic and he will have blood work again. If they haven’t come up he will be taken off imuran. I told Alex that we had waited around and Nick almost died in the last year and we weren’t going to do that again. We needed to be aggressive with the problem.

Thursday Evening Wedding

Saturday, June 20th, 2009

Nick and I attended a wedding Thursday evening. It was held at a home and was beautiful. The bridesmaids wore yellow dresses in different styles and the groomsmen brown tux. The tux color reminded me of my own wedding. With a redheaded husband brown was the way to go. The groom rolled the aisle runner down for the  bride which I thought was extra sweet. The one thing I don’t think they counted on was that it would be 97 degrees in June. 

Nick  painted the carport door and it looks great. He spent the afternoon Friday with a friend. His sister and her husband- to- be signed for their first house yesterday so I think she plans on Nick spending some time helping her paint. He may come out better getting a job.  

Days of Frustration

Wednesday, June 17th, 2009

I apologize that I’ve not been blogging for those following Nick’s progress. Tech stuff gets in my way. I’ve gotten my laptop repaired but it won’t let me login into my blog. I’ve tried for days to get on, even contacted my website person, gotten Andy to help me and now I’m planning to contact my lap top support person. I’m on Nick’s lab top for this post.

We are having VBS at church this week. I’m helping with middle school. I keep the rolls and do refreshments. All in all not too difficult but needed. Nick went with me today. A little slow for him so he is staying home tomorrow and painting the carport door. Not sure that is more exciting but certainly more active. He wouldn’t blow off the deck today because he said that he couldn’t work with electrical equipment because of the pacemaker. I’m going to check on that next week when he goes for a check up. 

The pacemaker seems to be doing well. The area isn’t hurting anymore but it is yellow and bruised looking. On Nick’s skinny chest it shows. Kind of gives him a peck which he thinks is all right.  He is staying busy going to the lake with Mother, hanging out with Drew and helping me at home.       

Jury Duty

Friday, June 12th, 2009

Nick has been doing well this week. Drew has been doing a soccer camp and Nick has been helping him. Nick has to wear a sling to keep from using his left arm too much. He says he can tell a difference after the pacemaker. He has more energy and is not lite headed any more. I guess he’d lived like that for so long that he thought  it was normal.

I’ve been on jury duty. Monday I sat and sat. Tuesday I didn’t have to go. Wednesday I went for one hour in the morning and one in the afternoon. Thursday I finally got to talk to a lawyer.  The defendant’s lawyer excused me because I’d been on the grand jury a few years ago and today I didn’t have to go. I know we have a great system and I’m glad to serve but being a yo-yo does get old. I spent more money than I made because I went to town everyday.      

Pacemaker

Monday, June 8th, 2009

I’m sure it will be no surprise to you that I’ve been having computer issues, which went to my blog for a little while. Nick says I have virus hands. He may be right, but I’ll ever admit that to him.

At my last post I left it with Nick being called to the hospital for a pacemaker. We got to the hospital around 8:30pm. I told Andy not to worry about going that we’d be down there for only a couple of nights. He’d missed so much work with Nick being sick and then another week or so for his back he needed to go to work.  Nick was monitored. His heart rate was staying in the 40s while he was awake. I will admit that it excited Andy and I some that they told us to come to the hospital right away. Nick had never been in trouble enough for that to happen before. The scary part started around 3:30am. Nick’s heart rate went into the 20s. The monitor didn’t like it at all, and neither did the nurses. With Nick going into a deep sleep it wouldn’t come up. Finally at 4:15 I woke Nick up and told him that he couldn’t sleep anymore. If he was awake his heart rate would stay up. We thought Nick would be first case and get a pacemaker at seven. He had been told not to eat after midnight. He didn’t like staying awake but I gave him no choice. We found out about 7:20 that he wouldn’t be going to the cath lab until around 11:30 or 12. Now he had little sleep and was hungry. He wasn’t a happy patient. Nick lab work also showed that his platelets were low. One fellow aked us about waiting to do the pacemaker on Monday. Nick and I told him that wasn’t going to happen. He would have live with his heart rate so low and we would have another night like we’d had the night before. Nick was given a platelet transfusion. They didn’t want him to bleed  and the platelets stop that.  Mother showed up to sit with me. She’d gotten up as early as us to drive the two hours to be there at 7. We wait and it made for a loooooong day. Nick got another doctor. Dr. Fishbauch. He is the pacemaker doctor. I told Andy one time that Nick collected doctors like some people do baseball cards. He seems to get a new one all the time. Nick was in the cath lab about 3 hours and came back to the room. They set the pacemaker at 60 per minutes mim. and 180 max. The max is so that Nick can run and play. The pacemaker should last six to eight years based on the amount of time it is used. He has two leads, one in the top chamber and one in the bottom.  Nick is feeling better but will have to go slow for a few weeks and not pull the area around where the pacemaker is located. I asked if this is the beginning of the end for the heart Nick has now. Dr. Vincent didn’t know. It could be or it could be an unrelated event.  We just have to wait and see. Andy and I have had enough. I know Nick has also. He needs for things to smooth out for a long while.