July 1st, 2009
Nick had to attend the teen transplant clinic on FridaY. That went well. While he was doing his clinic stuff I went To a meeting for parents.TherE werE only two parents but the other mother had 19 year old son. We had A lot in common.
When we were done with clinic Nick and I had to talk to be coordinator who told us Nick’s platelets had dropped again to 14,000. I had a fit and Nick was concerned.
We waited to see Dr.Abshire from hemotOlogy. He said we just need to watch it..
Tags: heart transplant, patelets
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June 25th, 2009
I’m still having computer problems. I hope to solve the last one today, which will cost but I want go into that. Makes me too mad.
Nick is out and about. The pacemaker seems to be working well. He still has one problem. His platelets are way low. Hoping they had gone up he had blood work on Monday. His platelets were 57,000 when he went into the hospital for the pacemaker. They should have been 100,000. After the transfusion they went up to 63,000. Monday’s were 37,000. At is 3,000 above being a hemophilic. The coordinator took him off Presaid which can cause the problem. We are going to the hospital tomorrow for the teen clinic and he will have blood work again. If they haven’t come up he will be taken off imuran. I told Alex that we had waited around and Nick almost died in the last year and we weren’t going to do that again. We needed to be aggressive with the problem.
Tags: heart transplant, platelets, Susan May
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June 20th, 2009
Nick and I attended a wedding Thursday evening. It was held at a home and was beautiful. The bridesmaids wore yellow dresses in different styles and the groomsmen brown tux. The tux color reminded me of my own wedding. With a redheaded husband brown was the way to go. The groom rolled the aisle runner down for the bride which I thought was extra sweet. The one thing I don’t think they counted on was that it would be 97 degrees in June.
Nick painted the carport door and it looks great. He spent the afternoon Friday with a friend. His sister and her husband- to- be signed for their first house yesterday so I think she plans on Nick spending some time helping her paint. He may come out better getting a job.
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June 17th, 2009
I apologize that I’ve not been blogging for those following Nick’s progress. Tech stuff gets in my way. I’ve gotten my laptop repaired but it won’t let me login into my blog. I’ve tried for days to get on, even contacted my website person, gotten Andy to help me and now I’m planning to contact my lap top support person. I’m on Nick’s lab top for this post.
We are having VBS at church this week. I’m helping with middle school. I keep the rolls and do refreshments. All in all not too difficult but needed. Nick went with me today. A little slow for him so he is staying home tomorrow and painting the carport door. Not sure that is more exciting but certainly more active. He wouldn’t blow off the deck today because he said that he couldn’t work with electrical equipment because of the pacemaker. I’m going to check on that next week when he goes for a check up.
The pacemaker seems to be doing well. The area isn’t hurting anymore but it is yellow and bruised looking. On Nick’s skinny chest it shows. Kind of gives him a peck which he thinks is all right. He is staying busy going to the lake with Mother, hanging out with Drew and helping me at home.
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June 12th, 2009
Nick has been doing well this week. Drew has been doing a soccer camp and Nick has been helping him. Nick has to wear a sling to keep from using his left arm too much. He says he can tell a difference after the pacemaker. He has more energy and is not lite headed any more. I guess he’d lived like that for so long that he thought it was normal.
I’ve been on jury duty. Monday I sat and sat. Tuesday I didn’t have to go. Wednesday I went for one hour in the morning and one in the afternoon. Thursday I finally got to talk to a lawyer. The defendant’s lawyer excused me because I’d been on the grand jury a few years ago and today I didn’t have to go. I know we have a great system and I’m glad to serve but being a yo-yo does get old. I spent more money than I made because I went to town everyday.
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